Sometimes you just can't win. I truly believed that I would be headed home by now, but no, here I am in the most uncomfortable hotel suite I have ever stayed in. The bed is hard as a rock, so I wake up each morning with a backache and both hips aching. The sofa and chair are broken down and impossible to sit or lay on for more than about 15 minutes. I have had to resort to a heating pad to get my skeleton to work in the morning.
Today is transplant plus 46. That means I have been in Denver for 56 days. Last week my doctor told me he would probably keep me here until AT LEAST transplant plus 60. That means I won't be in my comfy recliner for the Super Bowl, so I have set my sights on the Daytona 500. If he hasn't set me free by then, I'm going to just run away.
I go to the clinic every Monday, Wednesday and Friday. They draw my blood and run my labs and then either a doctor or a nurse practitioner comes in and asks me the same questions: are you have any vomitting, nausea or diharrea? do you have any rashes? are your legs swelling? how's your appetite? how's your vision? I dutifully answer honestly each time (no, no, yes, it sucks, blurry). It's so boring that I'm thinking of creating some real whoppers to make them sit up and notice how well I am doing.
I have had to receive two units of red blood cells each of the last three Fridays. Between the clinic routine and the transfusion, it eats up the entire day. But then, it's not like I have places to go and people to see.
I miss everything about my life, my home, my kids, my grandkids, my friends, my extended family, my office family, my office . . . maybe even the wind --- how sick is that?
All I can do is fire up the heating pad and count the days, transplant plus 47, transplant plus 48, transplant plus 50 . . . I can't count much higher than that, so I better be Cheyenne bound by then.
Thank you all for the cards, phone calls, prayers and overall support. I helps so much to know there are so many people who care.
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3 comments:
Hi Debbye,
We are keeping you in our prayers and think about you everyday! You are such a strong person and an inpspiration to us all! We really miss you too! Keep your chin up and I hope that the next two weeks will go extremely fast for you so you can be on your way back home! Be strong and stay tough and we will see you in May!! Your girls did a fabulous job (as usual) while we were in Cheyenne.
It has been really cold here and we had more snow today. Winter is definetly staying with us here in WY this year. I wish your bed, sofa and chair were better, that sucks (even if you were feeling great). Hang in there and when you get home it is going to be sooooo comfy!!!! You are over half way there and you will get your life back, yes really!! Don't overdo it and we will talk to you soon!
Take care and God Bless,
Connie
Debbye,
I had lost your blog address when my computer crashed. Margy found it on her computer. I was wondering how you were getting along. I see that you've had quite the road. I would hope you are home by now and doing well?
I know you are stong so you will do well. Make sure you don't do things too early to keep you well.
Keep the faith and I hope to see you in May
Julie
Hi Debbye,
I have been thinking about you. Hope that you are home and dreaming up projects for you and your husband. Take care and hope to see you soon.
Hugs and best wishes.
Paulette
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